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What is the Tourette Syndrome Association?

TSA, founded in 1972, is the only national voluntary non-profit membership organization dedicated to:

Identifying the cause; finding the cure; and controlling the effects of TS.

Members include individuals with the disorder, their relatives and other interested, concerned people. The Association develops and disseminates educational material to individuals, professionals and to agencies in the fields of health care, education and government; coordinates support services to help people and their families cope with the problems that occur with TS; funds research that will ultimately find the cause of and cure for TS, and at the same time, lead to improved medications and treatments.

TSA also:

  • Offers direct help to TS families in crisis situations through its Information and Referral Service
  • Organizes workshops and symposiums for scientists, clinicians and others working in the field of TS
  • Promotes public awareness and understanding
  • Develops and maintains state-by-state lists of doctors who can diagnose and treat TS, as well as medical referrals in other countries; lists of allied professionals (psychologists, social workers) by state; ABA lists of pro-bono attorneys by state; advocate lists by state; and lists of health insurance resources by state.
  • Sponsors the Tourette Syndrome Brain Bank Program involving collection of sorely needed tissue for scientific research
  • Serves many thousands of members throughout the USA and abroad
  • Increases the knowledge and sensitivity of health care professionals to TS through exhibits at conferences, the dissemination of literature and the organization of national meetings
  • Organizes and assists local chapters and support groups throughout the US and around the world
  • Represents the interests of members to the government on critical policy issues including orphan drugs, health insurance and employment

Events

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