Our annual TSAGW Trip to the Hill was recently held; when a dynamic group of volunteers met with various political leaders to share information and advocate for people and families affected by TS.

TSAGW thanks all of these volunteers for their meetings with legislators and for their efforts to raise TS awareness.

(Pictured during this Trip to the Hill are Susie Edelson, Ken Rippetoe, Representative Chris Van Hollen)

Representative Wolf met with:

• Laura Williamson McCafferty and son Ryan
• Brenda Dintiman and son Teddy Shanahan
• David Ginsburgh

Representative Connolly met with:

• Gary Bergman
• Tracy Louis-Charles and son Jordan
• Susan Billett

Representatives Van Hollen and Hoyer met with:

• Ken Rippetoe
• Susie Edelson
• Alexandra Praeger and son

Representative Jim Moran met with:

• Erik Mumford
• Sue Jacob

Volunteers of the Month

June Volunteer of the Month: Tracy Louis-Charles

TSAGW thanks Tracy for all her efforts in support of numerous Health Fairs and for advocating on our behalf, along with her son, during the spring 2009 TSAGW Trip to the Hill. Tracy is a strong, enthusiastic voice for TSAGW and we value the many ways she offers support, gets involved and helps to raise awareness of TS.

July Volunteer of the Month: Sam Zachary

Sam Zachary is an amazing volunteer! Sam attended Community Charity meetings and health fairs for TSAGW and then reported the information that he learned.  Sam created a desperately needed database, and willingly wrote roughly fifty thank you notes.  Sam always maintained an incredibly positive attitude, even when he updated hundreds of e-mail addresses for TSAGW's newsletter!  We miss him and wish him good luck at Tulane!

August Volunteer of the Month: Kim Murphy

We thank Kim for her work on the TSAGW newsletter.